IT'S MY HEART
This book was written by the Children's Heart Foundation for the purpose of assisting parents of childern with congenital heart defects. It is a wonderful resource for all parents at several different levels of care with their "heart child. Order your free copy of this book today. $3.95 handling fee plus normal shipping rates apply.
HEART OF A CHILD $19.95 (2001 REVISED EDITION)
This book is very beneficial for parents of children with complex/ severe congenital heart defects. This book deals with everything from physical, social, emotional, etc. aspects. It is extremely well done & easy to understand because it is written for parents. Copyright 2001- this is the paperback edition, the hardcover is available at a price of $46.95
HEART OF A MOTHER $24.95
This is a compilation of essays from mothers and grandmothers of children born with congenital heart defects is meant to provide support and inspiration to families of children with congenital heart defects.
TO MEND A BROKEN HEART $3.95
This book is designed to prepare parents facing their child's first heart surgery & explains everything from the types of heart surgery, types of incisions, what to expect in the PICU, etc. A very good reference for parents facing this experience for the first time!
This book is also available in Spanish $4.25
*** (NEW) HEART CATHS FOR KIDS $4.25-
This book is designed to help parents understand the pediatric catheterization procedure. This explains the process that you will follow upon admission to the hospital. Unlike the Matty's Heart Catheterization Coloring Book, this book is designed for the parent whereas Matty's Heart Cath Coloring Book is designed for the child.
GROWING UP STRONG $9.95
"It is not specific to one particular illness or condition but looks at the challenges that are shared by all children living with special health needs. Its pages are filled with information, but perhaps more importantly, with practical suggestions on helping children to grown positively through their own unique circumstances. After reading this book, both parents and professionals will see long-term illness in childhood in a whole new light. GROWING UP STRONG is one of those rare books you wish would never end!" - Mary Burkett, author
HEART DEFECTS IN CHILDREN: What Every Parent Should Know $12.95
This book is a definite must for all parents of children with any kind of congenital heart defect. It explains congenital heart defects, infections of the heart and its valves, test that may be required to help your child, questions to ask your child's doctor, how to help you and your child if surgery is required, commonly used medications, and future risk factors.
MY HEART STORY-$10.00- written by a parent after her child's surgical experience, this book is designed as a journal/ memory book for parent to keep while the child is in the hospital for surgery. The pages have very cute borders and are child appropriate with some pages being blank for pictures, others having lines for script. This also helps to explain to the child, when they are ready, what they have experienced.
SPECIAL KIDS NEED SPECIAL PARENTS $11.95
This book is an awesome resource for parents of children with special health issues. It deals with everything from the effects of the child's needs on the family, marriage, siblings, as well as the child him/ herself. There are suggestions for discipline, advocacy, peer issues as well as many others. All newly diagnosed parents should be given this book when they take their child home from the hospital (Michelle Rintamaki, mom to John, 22, tof, Kids With Heart National Association for Children's Heart Disorders, Inc.)
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Books for Kids
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MATTY'S HEART Sale Price $7.95 Regular Price $14.95
This book prepares children for open heart surgery in a way that they can understand. Kids With Heart families have purchased these since they first became available and the children love it. It is also great to explain it to siblings, relatives, and teachers. This book is distributed exclusively by Kids With Heart National Association for Children's Heart Disorders. For quantities of 25+, please contact us for your discounted price.
MATTY'S HEART CATHETERIZATION COLORING BOOK $3.99 ea
This book explains the heart catheterization procedure to children. It is also a coloring book, which can help the child feel a little more comfortable when dealing with the situation.
KID'S DISCOVER HEART-DEC. 1996 $4.25
This is a children's magazine from the Kids' Discover series. It has excellent diagrams of the heart & blood flow. It also includes articles about healthy hearts and how to keep them that way
BLUE LEWIS AND SASHA THE GREAT $5.95
Blue Lewis and Sasha the Great is a story about acceptance, love, hope, and healing. Lewis is born with a heart defect that keeps him from having enough oxygen, turning his nails and lips blue. It is hard for him to play with other kids, until his new puppy, Sasha, helps. This story is for young children who may empathize because they are ill, who have to learn how to triumph over adversity, or children who just feel left out sometimes.
HEAR YOUR HEART $4.99
This is a very basic book to help children understand their heart. It does not contain any information regarding congenital heart defects but can be a useful tool to explaining the normal heart to a child. This can help you to explain the individual situations for your heart child.
****NEW****NATHAN'S SPECIAL HEART-$9.95
Nathan's Special Heart" is a children's book, tracking Nathan's journey as he experienced a new minimally invasive surgery to treat a one-inch hole in his heart. Nathan's hole was
closed in the cath lab and this book helps children to understand this experience. This book is written by Jessica Ennis, publications editor for the Monroe Carell Jr. Children's Hospital at Vanderbilt. This book is sold exclusively by Kids With Heart National Assn for Children's Heart Disorders, Inc.
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Books for Adolescents & Young Adults
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EASY FOR YOU TO SAY $16.95
This book is awesome for adolescents dealing with chronic illness. It answers questions that most kids are reluctant to ask. It addresses the issues of street drugs, prescription drugs, sex, and many other questions that teens have but are afraid to ask. "This book is awesome"- John Rintamaki, 22, tetralogy of fallot.
THE BEAT GOES ON $4.75
This book is about living with a pacemaker or ICD that keeps your surgically repaired heart in beat. It takes the young adult with the congenital heart defect step by step through these following issues: 1) the heart and how it works 2) abnormal heart rhythms 3) types of devices and what they do 4) caring for a device. The Beat Goes On! answers a lot of the everyday questions about having a device that may leave some patients off the beat!
***NEW***IN A HEARTBEAT: A BABY'S HEART, A SURGEON'S HANDS, A LIFE OF
MIRACLES -$12.95
This book is written by Kimberly Russell, a 46 yr old congenital heart defect survivor. This is her family's true story of their journey on having a child with congenital heart defects. "This book should be helpful to any family living with a loved one with congenital heart defects and is an excellent reminder that life can be well lived, even in the face of severe medical problems" -Michael E McConnell, MD, Sibley Heart Center Cardiologist
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Books for Siblings
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CARDIAC KIDS $4.75
This book is a very good resource for explaining to siblings what the heart child will be experiencing. It explains all the different "heart" tests from the ekg, to the cath lab to the hospital. It also explains to a child how the heart works, in terms that they can understand. This book received wonderful reviews from both parents and professionals that we asked for their opinion prior to carrying it. Thank you to the staff at Children's Hospital of Wisconsin Heart Center who reviewed this book for us.
WHEN MOLLY WAS IN THE HOSPITAL $12.95
This book is written to help siblings understand what happens in a family when a sibling is hospitalized. It is a young girl telling her experience about when her baby sister was hospitalized, how she felt, the frustrations, the emotions, and what happened after the baby came home. While it is not specific for heart surgery, the issue of hospitalization, itself, is very well addressed.
MY BROTHER NEEDS AN OPERATION $20.00
This book is the story of how Joey's life was affected, in different ways, when little brother, Alex, went to the hospital. This interactive book provides parents & children an opportunity to talk about feelings & experiences and contains a section where the child can write about his/her own experiences and/or feelings, paste pictures/ mementos, & enjoy a variety of activities and games.
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Specialty Books
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DR. MANI'S FONTAN REPORT $5.00
Worries that often nag parents of children who have had a Fontan operation include uncertainty about the long term outcome and potential complications they might face. This report, written by Dr. Mani-Sivasubramanian, M.D., a cardiothoracic surgeon, is in non-technical language, seeks to calm these worries and provide easily understood information about the long term outcome after a Fontan operation. Please note that this is not a book but a written report by Dr. Mani-Sivasubramanian.
JEFF'S NEW PACEMAKER $2.50 (free if child has a pacemaker)
This book is designed to explain pacemakers to children. It explains the hospitalization involved when having a pacemaker implanted, the function of the pacemaker, as well as the difference it makes in how Jeff feels before the surgery Vs after.
YOUR CHILD HAS A PACEMAKER $4.95
The parents of a child who needs a pacemaker have lots of questions. We provide the answers with Your Child has a Pacemaker. It takes concerned parents on a tour of the entire pacemaker process from the trip to the hospital to going home. All of the major issues they will face are addressed in a clear and easy-to-understand fashion.
To print this order form to fax or mail your order in,
If you would perfer to call your order in, orders can
be placed by calling 1-800-538-5390
Shipping Charges are as follows unless otherwise noted:
$.01 - $20.00 ~ $6.00
$20.01 - $40.00 ~ $8.00
$40.01 - $60.00 ~ $10.00
$60.01 - $80.00 ~ $12.00
$80.01 + ~ $14.00
Shipping charges will be added at checkout.
If order is being shipped to a hospital, please indicate that with your order.
International Shipping Information
Listed shipping rates only apply to domestic U.S. orders. Non-U.S. orders are subject to the ACTUAL shipping rates. Orders being placed from outside the U.S should be called or faxed in. If this is not possible, please contact Michelle.
Please allow 2-3 weeks for delivery. If an order is needed urgently, please contact Michelle at 1-800-538-5390 or Michelle@kidswithheart.org
